Our message was heard! On December 30, 2020 – just two days before the new PMPRB Guidelines were due to come into force – the Government of Canada advised stakeholders that implementation of the amended Patented Medicines Regulations has been further delayed until July 1, 2021, in order to focus attention on COVID-19.

The Canadian Association of PNH Patients worked tirelessly in 2020 to ensure the new PMPRB guidelines would not impede PNH patients’ access to medicines and clinical trials. We are relieved the government took the right action to delay implementation.

We are grateful to everyone who supported the #stopPMPRBnow campaign! In case you missed them, you can watch below some of the media interviews we did leading up to the decision to delay:

We will keep you posted as we learn more and will stay close to this important issue.

For more information, see the statement issued by Innovative Medicines Canada (the association representing the pharmaceutical industry in Canada) in response to the delay.

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